Review Article

Diabetic Personal Health Record: A Systematic Review Article

Abstract

Background: Diabetes disease is one of the 4 main types of non-communicable diseases. No research has been conducted in order to identify data items for Diabetic Personal Health Record (DPHR), in Iran. This study, with the aim of systematically developing the DPHR was done to supply ultimately the country with a national model through Delphi method.

Methods: We conducted a systematic review of the literature using the following electronic databases: PubMed, Web of sciences, Scopus, Science Direct, and ACM digital library. The year of the study included the obtained articles was 2013. We used a 3-step method to identify studies related to DPHR. Study selection processes were performed by two reviewers independently. The eligible studies were included in this review. Quality of studies was assessed using a mixed approach scoring system. Reviewers used 2-step method for the validation of the final DPHR model.

Results: Initially, 2011 papers were returned from online databases and 186 studies from gray literature search. After removing duplicates, study screening, and applying inclusion and exclusion criteria, 129 studies were eligible for further full-text review. Considering the full-text review, 34 studies were identified for final review. Given the content of selected studies, we determined seven main classes of DPHR. The highest score belongs to home monitoring data class by mean of 19.83, and the lowest was general data class by mean of 3.89.

Conclusion: Together with representative sample of endocrinologist in Iran achieved consensus on a DPHR model to improve self-care for diabetic patients and to facilitate physician decision making.

 

World Health Organization (2015). Noncommunicable diseases. http://www.who.int/mediacentre/factsheets/fs355/en/.

Tani S, Marukami T, Matsuda A, Shindo A, Takemoto K, Inada H (2010). Development of a health management support system for patients with diabetes mellitus at home. J Med Syst, 34 (3): 223-8.

Lim S, Kim SY, Kim JI, Kwon MK, Min SJ, Yoo SY, et al. (2011). A survey on ubiquitous healthcare service demand among diabetic patients. Diabetes Metab J, 35 (1): 50-7.

Lyles CR, Harris LT, Le T, Flowers J, Tufano J, Britt D, et al. (2011). Qualitative evaluation of a mobile phone and web-based collaborative care intervention for patients with type 2 diabetes. Diabetes Technol Ther, 13 (5): 563-9.

International Diabetes Federation (2016). About diabetes. http://www.idf.org/about-diabetes.

World Health Organization(2016). Complications of diabetes. http://www.who.int/diabetes/action_online/basics/en/index3.html.

Ruggiero L, Glasgow R, Dryfoos J, Rossi J, Rochaska J, Orleans C, et al. (1997). Diabetes self-management. Self-reported recommendations and patterns in a large population. Diabetes Care, 20: 568-76.

Robiner W, Keel P (1997). Self-management behaviors and adherence in diabetes mellitus. Semin Clin Neuropsychiatry, 2: 40–56.

Fonda SJ, Kedziora RJ, Vigersky RA, Bursell SE (2010). Evolution of a web-based, prototype Personal Health Application for diabetes self-management. J Biomed Inform, 43 (5 Suppl): S17-21.

World Health Organization (2016). Global report on diabetes. http://apps.who.int/iris/bitstream/10665/204871/1/9789241565257_eng.pdf?ua=1.

International Diabetes Federation (2015). Iran vs world prevalence of diabetes. http://www.idf.org/membership/mena/iran.

World Health Organization (2014). Global status report on noncommunicable diseases 2014. http://www.who.int/nmh/publications/ncd-status-report-2014/en/.

Shaw JE, Sicree RA, Zimmet PZ (2010). Global estimates of the prevalence of diabetes for 2010 and 2030. Diabetes Res Clin Pract, 87 (1): 4-14.

Baan CA, van Baal PH, Jacobs-van der Bruggen MA, Verkley H, Poos MJ, Hoogenveen RT, et al. (2009). Diabetes mellitus in the Netherlands: estimate of the current disease burden and prognosis for 2025. Ned Tijdschr Geneeskd, 153: A580.

Ronda MC, Dijkhorst-Oei LT, Gorter KJ, Beulens JW, Rutten GE (2013). Differences between diabetes patients who are interested or not in the use of a patient web portal. Diabetes Technol Ther, 15 (7): 556-63.

Buettner K, Fadem SZ (2008). The internet as a tool for the renal community. Adv Chronic Kidney Dis, 15 (1): 73-82.

Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ (2006). Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc, 13 (2): 121-6.

Kahn JS, Aulakh V, Bosworth A (2009). What it takes: characteristics of the ideal personal health record. Health Aff (Millwood), 28 (2): 369-76.

Detmer D, Bloomrosen M, Raymond B, Tang P (2008). Integrated personal health records: transformative tools for consumer-centric care. BMC Med Inform Decis Mak, 8: 45.

Raisinghani MS, Young E (2008). Personal health records: key adoption issues and implications for management. Int J Electron Healthc, 4 (1): 67-77.

Healthcare Information and Management Systems Society (2007). HIMSS Personal Health Records: Definition and Position Statement. http://www.healthimaging.com/topics/diagnostic-imaging/himss-releases-phr-definition-position-statement.

Burrington-Brown J, Fishel J, Fox L, Friedman B, et al. (2005). Defining the personal health record. AHIMA releases definition, attributes of consumer health record. J AHIMA, 76 (6): 24-5.

Institute of Medicine (US) Committee on the Future Health Care Workforce for Older Americans (2008). Retooling for an Aging America: Building the Health Care Workforce. National Academies Press, Washington (DC), US. p: 300.

Department of Health (2008). NHS next stage review: our vision for primary and community care. http://www.nhshistory.net/dhvisionphc.pdf

Gu Y, Orr M, Warren J, Humphrey G, Day K, Tibby S, et al. (2013). Why a shared care record is an official medical record. N Z Med J, 126 (1384): 109-17.

American Diabetes Association (2008). Introduction. Diabetes Care, 31 (Supplement 1): S1-S2.

Sandra LD, Deborah D (2012). Johns Hopkins Nursing Evidence-Based Practice Model and Guidelines. 2nd ed. Institute for Johns Hopkins Nursing. Baltimore, Maryland, United States. p: 256.

International Diabetes Federation (2016). Diabetes in Iran. https://www.idf.org/membership/mena/iran.

Farzi J, Salem safi P, Zohoor A, Ebadi Fard azar F (2008). The study of national diabetes registry system model suggestion for Iran. J Ardabil Univ Med Sci, 8 (3): 288-93.

Azizi A, Aboutorabi R, Mazloum-Khorasani Z, Afzal-Aghaea M, Tara M (2016). Development, validation, and evaluation of Web-based Iranian Diabetic Personal Health Record: rationale for and protocol of a Randomized Controlled Trial. JMIR Res Protoc, 5 (1): e39.

Azizi A, Aboutorabi R, Mazloum-Khorasani Z, Afzal-Aghaea M, Tabesh H, Tara M (2016). Evaluating the effect of Web-based Iranian Diabetic Personal Health Record app on selfcare status and clinical indicators. JMIR Med Inform, 21 ; 4(4): e32.

van Wersch A, de Boer MF, van der Does E, de Jong P, Knegt P, Meeuwis CA, et al. (1997). Continuity of information in cancer care: evaluation of a logbook. Patient Educ Couns, 31 (3): 223-36.

McGinn CA, Grenier S, Duplantie J, Shaw N, Sicotte C, Mathieu L, et al. (2011). Comparison of user groups' perspectives of barriers and facilitators to implementing electronic health records: a systematic review. BMC Med, 9: 46.

Kalankesh LR, Dastgiri S, Rafeey M, Rasouli N, Vahedi L (2015). Minimum data set for cystic fibrosis registry: a case study in Iran. Acta Inform Med, 23 (1): 18-21.

Ghaneie M, Rezaie A, R Ghorbani N, Heidari R, Arjomandi M, Zare M (2013). Designing a minimum data set for breast cancer: a starting point for breast cancer registration in Iran. Iran J Public Health, 42 (1): 66-73.

Safdari R, Dargahi H, Halabchi F, Shadanfar K, Abdolkhani R (2014). A comparative study of the athlete health records’ minimum data set in selected countries and presenting a model for Iran. Payavard, 8(2):134-42.

Rafii F, Ahmadi M, Hoseini AF, Habibi Koolaee M (2011). Nursing minimum data set: an essential need for Iranian health care system. Iran J Nurs, 24 (71): 19-27.

Ahmadi M, Mohammadi A, Chraghbaigi R, Fathi T, Shojaee Baghini M (2014). Developing a minimum data set of the information management system for orthopedic injuries in Iran. Iran Red Crescent Med J, 16 (7): e17020.

National Health Service (NHS) Greater Glasgow and Clyde (2016). My diabetes handheld record. http://www.nhsggc.org.uk/content/mediaassets/pdf/HSD/Diabetes%20Handheld%20Record.pdf.

Kaiser foundation health plan of the mid-atlantic states (2014). Personal Diabetes Record. https://thrive.kaiserpermanente.org/care-near-mid-atlantic.

The Diabetes Coalition of California (2006). English Diabetes Health Record (DHR) card. http://diabetescoalitionofcalifornia.org/health-records/.

National Health Service (NHS) primary care diabetes specialist team (2016). My Personal Diabetes Handheld Record and care plan. http://www.mysurgerywebsite.co.uk/website/M83041/files/Diabetes-My-Personal-Diabetes-Handheld-Record-and-Care-Plan.pdf.

NHS plymouth diabetes service (2014). Patient Held Record Diabetes. http://www.bathdiabetes.org/index2.php?section_id=550.

National Health Service (NHS) Enfield PCT Diabetes Team (2014). Patient Held Diabetes Care Record. https://www.diabetes.org.uk/upload/Shared%20practice/hand_held_record.pdf.

Kentucky Diabetes Network (2014). My Personal Diabetes Health Card. http://www.mc.uky.edu/equip-4-pcps/equip-4-dm/DIABETES_HEALTHCARD.pdf.

Lilly Diabetes (2011). This is your log book. http://www.lillydiabetes.com/_assets/pdf/hi86641_logbook.pdf.

Lilly Diabetes (2012). Personal solutions for everyday life: self-care diary. http://documentslide.com/documents/ld79617-self-care-diary-10912-final-v1.html.

National Diabetes Education Program (2014). My Diabetes Care Record. http://www.pdep.org/pdfs/evryhwnshldknowbooklet.pdf.

Anonymous (2009). Checkbook for diabetes health. http://www.lillyforbetterhealth.com/_Assets/pdf/resources/HE96978-diabetes-journal-checkbook-for-diabetes-health-large-print.pdf.

The Utah State University (2014). Take charge of your health: your personal health manual. http://www.usu.edu/wellness/files/uploads/Participant_Packet.pdf.

New York Diabetes Coalition DOHD (2014). Personal Diabetes Care Card. https://www.health.ny.gov/publications/0942_en.pdf.

American Association of Diabetes Educators (2014). Measurable behavior change is the desired outcome of diabetes education. http://medicine.emory.edu/documents/endocrinology-diabetes-aade7-self-care-behaviors.pdf.

Primary Care Office Department of Health (2011). My Health Passport (for Patients with Diabetes/Hypertention). http://www.pco.gov.hk/english/resource/files/my_health_passport_patients_eng.pdf.

Wisconsin Diabetes Advisory Group and the Diabetes Prevention and Control Program (2013). Personal Diabetes Care Record. https://www.dhs.wisconsin.gov/forms/f4/f49357.pdf.

Davies M, Quinn M (2001). Patient-held diabetes record promotes seamless shared care. Guidelines in Practice. http://www.eguidelines.co.uk/eguidelinesmain/gip/vol_4/nov_01/davies_diabetes_nov01.htm.

Dijkstra RF, Braspenning JC, Huijsmans Z, Akkermans RP, van Ballegooie E, ten Have P, et al. (2005). Introduction of diabetes passports involving both patients and professionals to improve hospital outpatient diabetes care. Diabetes Res Clin Pract, 68 (2): 126-34.

Eve-Sarliker S, Bivian-Chavez M (2014). Evaluation of Diabetes Health Record Card use among diabetes consumer action group volunteers. http://s9.picofile.com/d/8278500300/c10383e1-8051-445c-99bb-54a77c7ca4f1/EvaluationDiabetesHealthRecordCard.pdf.

Fuji KT, Abbott AA, Galt KA (2014). Personal Health Record design: qualitative exploration of issues inhibiting optimal use. Diabetes Care, 37 (1): e13-4.

Wald JS, Grant RW, Schnipper JL, Gandhi TK, Poon EG, Businger AC, et al. (2009). Survey analysis of patient experience using a practice-linked PHR for type 2 diabetes mellitus. AMIA Annu Symp Proc, 2009:678-82.

Grant RW, Wald JS, Schnipper JL, Gandhi TK, Poon EG, Orav EJ, et al. (2008). Practice-linked online personal health records for type 2 diabetes mellitus: a randomized controlled trial. Arch Intern Med, 168 (16): 1776-82.

Holbrook A, Thabane L, Keshavjee K, Dolovich L, Bernstein B, Chan D, et al. (2009) Individualized electronic decision support and reminders to improve diabetes care in the community: COMPETE II randomized trial. CMAJ, 181 (1-2): 37-44.

Tenforde M, Nowacki A, Jain A, Hickner J (2012). The association between personal health record use and diabetes quality measures. J Gen Intern Med, 27 (4): 420-4.

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IssueVol 45 No 11 (2016) QRcode
SectionReview Article(s)
Keywords
Type 2 diabetes Personal health record Systematic review Self-care Iran

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How to Cite
1.
AZIZI A, ABOUTORABI R, MAZLOUM-KHORASANI Z, HOSEINI B, TARA M. Diabetic Personal Health Record: A Systematic Review Article. Iran J Public Health. 2016;45(11):1388-1398.