Eye Injury Registries: A Review on Key Registry Processes
Abstract
Background: Data management related to eye injuries is vital in improving care process, improving treatment and implementing preventive programs. Implementation of a registry to manage data is an integral part of this process. This systematic review aimed to identify processes related to eye injury registries.
Methods: Databases such as PubMed, Web of Science, Embase and Scopus were used in searching for articles from 2010 to Oct 2020 using the keywords “eye injuries” and” registry”. The identified processes related to eye injuries registry such as case finding, data collection, abstracting, reporting, follow-up and data quality control are presented in this review.
Results: Of 1493 articles retrieved, 30 articles were selected for this study based on the inclusion and exclusion criteria. Majority of these studies were conducted in the United States. All registries had case finding and the most common resources for case finding included medical documents, reports and screening results. Moreover, majority of registries collected data electronically. However, few registries used data quality attributes to improve the data collected.
Conclusion: Eye injury registry plays an important role in the management of eye injury data and as a result, better management of these data will be established. Taking into consideration that the quality of collected data has a vital role in adopting prevention strategies, it is essential to use high-quality data and quality control methods in planning and designing eye injury registries.
2. Kinderan YV, Shrestha E, Maharjan IM, et al (2012). Pattern of ocular trauma in the western region of Nepal. Nepal J Ophthalmol, 4(1):5-9.
3. Cotter SA, Varma R, Ying-Lai M, et al (2006). Causes of low vision and blindness in adult Latinos: the Los Angeles Latino Eye Study. Ophthalmology, 113(9):1574-82.
4. Khan S, Maqbool A, Abdullah N, et al (2012). Pattern of ocular injuries in stone pelters in Kashmir valley. Saudi J Ophthalmol, 26(3):327-30.
5. Négrel AD, Thylefors B (1998). The global impact of eye injuries. Ophthalmic Epidemiol, 5(3):143-69.
6. Owens PL, Mutter R (2008). Emergency Department Visits Related to Eye Injuries, Statistical Brief #112. 2011 May. In: Healthcare Cost and Utilization Project (HCUP) Statistical Briefs [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US). Available at: https://www.ncbi.nlm.nih.gov/books/NBK56035/
7. Iftikhar M, Latif A, Farid UZ, et al (2019). Changes in the Incidence of Eye Trauma Hospitalizations in the United States From 2001 Through 2014. JAMA Ophthalmol, 137(1):48-56.
8. Pascolini D, Mariotti SP (2012). Global estimates of visual impairment: 2010. Br J Ophthalmol, 96(5):614-8.
9. Faal H, Cook C, Thulasiraj R (2010). Managing information in eye care programmes: the health systems perspective. Community Eye Health, 23(74):50-52.
10. AHRQ Methods for Effective Health Care. In: Gliklich RE, Dreyer NA, Leavy MB, editors (2014). Registries for Evaluating Patient Outcomes: A User's Guide. Rockville (MD): Agency for Healthcare Research and Quality (US); 2014.
11. Abdelhak M, Grostick S, Hanken MA. Health information-e-book: Management of a strategic resource. Elsevier Health Sciences (1996).
12. Brooke EM, World Health O (1974). The current and future use of registers in health information systems / Eileen M. Brooke. Geneva: World Health Organization.
13. Schmidt M, Schmidt SAJ, Sandegaard JL, et al(2015). The Danish National Patient Registry: a review of content, data quality, and research potential. Clin Epidemiol, 2015;7:449-90.
14. Moghaddasi H, Tabatabaei SM (2018). A Study of Population based Diabetes Registryin Developed Countries. JOJ Nursing and health care, 8(2); 780-786
15. Yao S, Kuja-Halkola R, Thornton LM, et al(2016). Familial Liability for Eating Disorders and Suicide Attempts: Evidence From a Population Registry in Sweden. JAMA Psychiatry, 73(3):284-91.
16. Asadi F, Paydar S (2018). Presenting an evaluation model of the trauma registry software. Int J Med Inform,112:99-103.
17. Asadi F, Mirshekarlou SJ, Rahimi F (2019). A comparative study of the national infertility registry system and the proposed model for Iran. CJMB, 5(4):318-324.
18. Larsson S, Lawyer P, Garellick G, et al (2012). Use of 13 disease registries in 5 countries demonstrates the potential to use outcome data to improve health care's value. Health Aff (Millwood), 31(1):220-7.
19. Nwomeh BC, Lowell W, Kable R, et al(2006). History and development of trauma registry: lessons from developed to developing countries. World J Emerg Surg,1:32.
20. Tan JCK, Ferdi AC, Gillies MC, et al (2019). Clinical Registries in Ophthalmology. Ophthalmology, 126(5):655-662.
21. Hoskin AK, Watson SL, Mackey DA, et al (2019). Eye injury registries - A systematic review. Injury, 50(11):1839-1846.
22. Cochrane Effective Practice and Organisa-tion of Care (EPOC). Suggested risk of bias criteria for EPOC reviews. EPOC Resources for review authors,2017. Cit-ed[20 September 2020]. Available at: http://epoc.cochrane.org/resources/epoc-resources-review-authors
23. Capao Filipe JA, Fernandes VL, et al (2003). Soccer-related ocular injuries. Arch Ophthalmol, 121(5):687-94.
24. Prati M, Azzolini C, Borgioli M, et al (2004). The Italian Eye Injury Registry. IOVS, 45:U681.
25. Toh ZH, Agrawal S, Raje D,et al (2020). International globe and adnexal trauma epidemiology study (IGATES): a report from Central India on visual outcome in open globe injuries and correlation with ocular trauma score. Int Ophthalmol, 40(11):2797-2806.
26. Justin GA, Turnage WA, Brooks DI, et al (2020). Orbital Fractures and Associated Ocular Injuries in Operation Iraqi Freedom and Operation Enduring Freedom Referred to a Tertiary Care Military Hospital and the Effect on Final Visual Acuity. Ophthalmic Plast Reconstr Surg, 36(1):55-60.
27. Huckhagel T, Regelsberger J, Westphal M, et al(2020). Damage to the eye and optic nerve in seriously traumatized patients with concomitant head injury: analysis of 84,627 cases from the TraumaRegister DGU (R) between 2002 and 2015. Scand J Trauma Resusc Emerg Med, 28(1):15.
28. Hossain P, Tourkmani AK, Kazakos D, et al (2018). Emergency corneal grafting in the UK: a 6-year analysis of the UK Transplant Registry. Br J Ophthalmol, 102(1):26-30.
29. Salowi MA, Chew FLM, Adnan TH, et al (2017). The Malaysian Cataract Surgery Registry: risk Indicators for posterior capsular rupture. Br J Ophthalmol, 101(11):1466-1470.
30. Chopra N, Gervasio KA, Kalosza B, et al (2018). Gun trauma and ophthalmic outcomes. Eye (Lond), 32(4):687-692.
31. Beshay N, Keay L, Dunna H, et al (2017). The epidemiology of Open Globe Injuries presenting to a tertiary referral eye hospital in Australia. Injury, 48(7):1348-1354.
32. Al-Mahrouqi HH, Al-Harthi N, Al-Wahaibi M, et al (2017). Ocular trauma: A tertiary hospital experience from Oman. Oman J Ophthalmol, 10(2):63-69.
33. Lee RH, Fredrick D (2015). Pediatric eye injuries due to nonpowder guns in the United States, 2002-2012. J AAPOS, 19(2):163-8.
34. Feng K, Wang C-g, Hu Y-t, et al (2015). Clinical features and prognosis of eyeball rupture: eye injury vitrectomy study. Clin Exp Ophthalmol, 43(7):629-36.
35. Feng X, Feng K, Hu Y, et al (2014). Clinical features and outcomes of vitrectomy in pediatric ocular injuries-eye injury vitrectomy study. Indian J Ophthalmol, 62(4):450-453.
36. Guerra Garcia R, Garcia D, Martinez F, et al (2013). The Cuban ocular trauma registry. J Clin Exp Ophthalmol, 4(2):276.
37. Armstrong G, Chen A, Linakis J, et al (2013). Motor vehicle crash-associated eye injuries presenting to united states emergency departments. West J Emerg Med, 15(6):693-700.
38. Pollard KA, Xiang HY, Smith GA (2012). Pediatric Eye Injuries Treated in US Emergency Departments, 1990-2009. Clin Pediatr (Phila), 51(4):374-81
39. Zhang Y, Zhang MNA, Jiang CH, et al (2011). Intraocular Foreign Bodies in China: Clinical Characteristics, Prognostic Factors, and Visual Outcomes in 1421 Eyes. Am J Ophthalmol, 152(1):66-73.
40. Rasmussen ML, Prause JU, Johnson M, et al (2010). Review of 345 eye amputations carried out in the period 1996-2003, at Rigshospitalet, Denmark. Acta Ophthalmol, 88(2):218-21.
41. Sinclair SA, Smith GA, Xiang HY (2006). Eyeglasses-related injuries treated in US emergency departments in 2002-2003. Ophthalmic Epidemiol, 13(1):23-30.
42. McGwin G, Jr., Hall TA, Seale J, et al (2006). Consumer product-related eye injury in the United States, 1998-2002. J Safety Res, 37(5):501-6.
43. Kuhn F, Morris R, Witherspoon CD, et al (2006). Epidemiology of blinding trauma in the United States Eye Injury Registry. Ophthalmic Epidemiol, 13(3):209-16.
44. Girkin CA, McGwin G Jr., Morris R, et al (2005). Glaucoma following penetrating ocular trauma: a cohort study of the United States Eye Injury Registry. Am J Ophthalmol, 139(1):100-5.
45. Viestenz A, Kuchle M (2002). Ocular contusion caused by elastic cords: a retrospective analysis using the Erlangen Ocular Contusion Registry. Clin Exp Ophthalmol, 30(4):266-9.
46. Lundström M, Stenevi U, Thorburn W. The Swedish National Cataract Register: A 9-year review. Acta Ophthalmol Scand. 2002;80(3):248-57.
47. May DR, Kuhn FP, Morris RE, et al (2000). The epidemiology of serious eye injuries from the United States Eye Injury Registry. Graefe's archive for clinical and experimental ophthalmology. Graefes Arch Clin Exp Ophthalmol, 238(2):153-7.
48. Lau JJ, Thach AB, Burden JH, et al (2000). Eye injuries in the U.S. Armed Forces. Mil Med, 165(9):683-6.
49. Feng K, Hu Y, Wang C, et al (2013). Risk factors, anatomical, and visual outcomes of injured eyes with proliferative vitreoretinopathy: eye injury vitrectomy study. Retina, 33(8):1512-8.
50. Feng K, Shen L, Pang X, et al (2011). Case-control study of risk factors for no light perception after open-globe injury: eye injury vitrectomy study. Retina, 31(10):1988-96.
51. Mowatt L, McDonald A, Ferron-Boothe D (2012). Hospitalization Trends in Adult Ocular Trauma at the University Hospital of the West Indies. West Indian Med J , 61(6):605-9.
52. McGwin G, Jr., Hall TA, Xie A, et al (2006). Gun-related eye injury in the United States, 1993-2002. Ophthalmic Epidemiology, 13(1):15-21.
53. Hashemi N, Moghaddasi H, Rabiei R, et al (2018). Eye Health Information Systems in Selected Countries. J Ophthalmic Vis Res, 13(3):333-338.
54. Tabrizi AT, Moghaddasi H, Rabiei R, et al (2019). Development of a Catheterization and Percutaneous Coronary Intervention Registry with a Data Management Approach: A Systematic Review. Perspect Health Inf Manag, 16(Winter):1b.
55. Haider AH, Saleem T, Leow JJ, et al (2012). Influence of the National Trauma Data Bank on the study of trauma outcomes: is it time to set research best practices to further enhance its impact? J Am Coll Surg ,214(5):756-68.
56. Datta I, Findlay C, Kortbeek JB, et al (2007). Evaluation of a regional trauma registry. Can J Surg, 50(3):210-213.
57. Moghaddasi H, Rabiei R, Asadi F, et al (2017). Evaluation of Nursing Information Systems: Application of Usability Aspects in the Development of Systems. Healthc Inform Res, 23(2), 101–108.
58. Arani LA, Hosseini A, Asadi F, et al. (2018). Intelligent Computer Systems for Multiple Sclerosis Diagnosis: a Systematic Review of Reasoning Techniques and Methods. Acta Inform Med, 26(4), 258–264.
59. Palmer CS, Davey TM, Mok MT, et al (2013). Standardising trauma monitoring: the development of a minimum dataset for trauma registries in Australia and New Zealand. Injury , 44(6):834-41.
60. Pati S, Dwivedi R, Athe R, et al (2019). Minimum data set (MDS) based trauma registry, is the data adequate? An evidence-based study from Odisha, India. J Family Med Prim Care, 8(1):7-13.
61. Ahmadi M, Mohammadi A, Chraghbaigi R, et al (2014). Developing a Minimum Data Set of the Information Management System for Orthopedic Injuries in Iran. Iran Red Crescent Med J, 16(7):e17020.
62. Hawes C, Morris JN, Phillips CD, et al (1997). Development of the nursing home Resident Assessment Instrument in the USA. Age Ageing, 2:19-25.
63. Garavand A, Rabiei R, Emami H, et al (2020). The attributes of hospital-based coronary artery diseases registries with a focus on key registry processes: A systematic review. Health Inf Manag, 1833358320929366.
Files | ||
Issue | Vol 50 No 12 (2021) | |
Section | Review Article(s) | |
DOI | https://doi.org/10.18502/ijph.v50i12.7932 | |
Keywords | ||
Eye injury registries Eye injuries Ocular trauma Registries Systematic review |
Rights and permissions | |
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |