Tehran University of Medical Sciences Iranian Journal of Public Health 2251-6085 49 4 2020 04 01 736 743 EN Zahra AZADMANJIR Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran AND Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran AND National Inistitue for Medical Research Development (NIMAD), Tehran, Iran Zahra MOHTASHAM-AMIRI Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Seyed-Mahdi ZIABARI Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Leila KOCHAKINEJAD Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Hamid HAIDARI Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Mina MOHSENI Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Hadis SABOUR Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran Zahra KHAZAEIPOUR Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran Mahdi SHARIF-ALHOSEINI Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran Zahra GHODSI Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran Abbas AMIRJAMSHIDI Department of Neurosurgery, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran Farshad AKBARZADEH Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran Kazem ZENDEHDEL Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran Amir AZARHOMAYOUN Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran Khatereh NAGHDI Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran Gerard OREILLY Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia Ellen MERETE 1. Autonomic Unit, National Hospital for Neurology & Neurosurgery, Queen Square, London, UK 2. Institute of Neurology, University College London, London, UK Alexander R Vaccaro Department of Orthopaedic Surgery, The Rothman Institute, Thomas Jefferson University, Philadelphia, USA Edward C BENZEL Cleveland Clinic Foundation, Department of Neurosurgery, Cleveland, Ohio, USA Seyed Behzad JAZAYERI Department of Urology, University of Florida, Jacksonville, FL, USA Vafa RAHIMI-MOVAGHAR Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran AND Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran 2018 06 11 2018 10 08 Background: The National Traumatic Spinal Cord Injury Registry in Iran (NSCIR-IR), was implemented initially in three hospitals as a pilot phase from 11 Oct 2015 to 19 Jun 2016 and has been active in eight centers from 19 Jun 2016. Poursina Hospital, a trauma care referral center in Rasht, Guilan Province of Iran is one of the registry sites, and has been involved in registering eligible patients since 1 Jan 2016. This study aimed to identify the challenges and solutions for sustaining the NSCIR-IR in a regional center. Methods: This was a mixed-methods study. For the quantitative analysis, a retrospective observational design was used to measure case capture or case identification rate, mapping cases in the registry against those eligible for registry inclusion amongst the register of hospital admissions. For the qualitative component, data was collected using focus group discussions and semi-structured interviews, followed by thematic analysis. Results: From 19 Jun 2016 to 24 Jan 2018, the proportion of case capture (case identification rate) was 17%. The median time between case identification and data entry to the system was 30.5 d (range: 2 to 193 d). Thematic analysis identified a lack of trained human resources as the most important cause of low case identification rate and delay in data completion. Conclusion: Recruitment and education to increase trained human resources are needed to improve case capture, the timeliness of data input and registry sustainability in a regional participating site. https://ijph.tums.ac.ir/index.php/ijph/article/view/13682 https://ijph.tums.ac.ir/index.php/ijph/article/download/13682/6888